|Hope today after getting her hair done.|
July 25th - Hope is in the OR at 8:21 pm waiting for her new heart to arrive
July 26th - Hope's new heart arrives at 12:21 am
July 26th - We get to see Hope for a few minutes at 9:06 am. They have not been able to regulate her blood pressure and we were told to go get some sleep.
July 26th - Hope coded and Dr. Stewart had to manually compress her heart for over an hour. She was taken back to the OR at 10:39 am and she is definitely going to be on ECMO (life support).
July 26th - We finally get to see Hope again at 3:39 pm. She is super swollen and on ECMO. They are pretty sure her brain has been affected as she arrested for over an hour.
July 27th - Hope has continuous seizure activity. Neurology tells us this is definitely a sign of moderate to severe brain damage.
July 27th - Hope starts dialysis to give her kidneys a rest.
July 28th - Community prayers begin at 9:00 pm EST. They definitely work!!!
July 29th - Dr. Stewart cleans out her chest, puts in a pacer, and clamps off the ECMO cannula from her right atrium.
July 30th - Everyone feels like the heart is working perfectly. They are still scaring us with head issues. Mommy paints princesses toenails.
July 31st - ECMO settings continue to be lowered and Hope is holding her own without any issues. Hope also gets some cool new boots.
August 1st - Hope is off life support!
August 2nd - Hope is doing pretty good. Still some blood pressure issues, but not bad.
August 3rd - Hope is extremely sensitive to stimulus so dad and mom are sleeping at home.
August 4th - Hope's chest is closed!
August 5th - Hope moves and is starting to wake up more often. Pacer is turned off.
August 6th - Hope is waking up and opening her eyes. She is able to move everything other than her left arm on command.
August 7th - Hope is stable and not much planned for the day.
August 8th - They are working on vent settings.