tag:blogger.com,1999:blog-6897689393274111024.post8363401402568349666..comments2023-10-31T11:07:27.803-04:00Comments on Hope's Blog: Cardiology AppointmentWodzisz Familyhttp://www.blogger.com/profile/03402962907991995167noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6897689393274111024.post-79698142525708480802010-01-13T20:15:57.448-05:002010-01-13T20:15:57.448-05:00Thanks for following my blog! You had asked for mo...Thanks for following my blog! You had asked for more info how I got Chloe's Law into legislation.<br /><br />I wrote my local House Representative for my district numerous times. I called his secretary numerous times too! I included a ton of research links in my emails that prove Pulse Ox Screening can detect some CHDs in some babies and save lives. Stressed how quick, painless, easy and inexpensive this test is. He finally agreed to support it. <br /><br />A bill was drafted and asssigned a bill number. Im waiting for it to be assigned to a committee. I hope to meet with the committe chair soon.<br /><br />This bill could die any minute. If so, i will re-submit next year.<br /><br />Also, the bill is subject to appropriations. So if it does pass, I still have to wait to see if the budget will allow for it.<br /><br />Hope that helps!kelly manzhttps://www.blogger.com/profile/01237677633666557609noreply@blogger.comtag:blogger.com,1999:blog-6897689393274111024.post-30162724935999026402010-01-11T16:04:07.587-05:002010-01-11T16:04:07.587-05:00I understand those appointments. I cannot deal wi...I understand those appointments. I cannot deal with it too well when Mackynlee cries. I try to look on the outside like it is okay, but on the inside I am going crazy. I think it is things like that that are aging me quickly!! Many times I cannot remember people's names that I should know right off of the top of my tongue. I walk into the kitchen and do not remember why. ETC Praying for you and baby Hope. I love Stephanie's poems!! Heart Hugs, SusanMark and Susanhttps://www.blogger.com/profile/00554416277796860806noreply@blogger.comtag:blogger.com,1999:blog-6897689393274111024.post-38030818637647535142010-01-08T17:07:40.197-05:002010-01-08T17:07:40.197-05:00Sorry that you were both put through that terrible...Sorry that you were both put through that terrible appointment. I could only imagine how hard that was for you! I am glad to hear that she continues to do so well. I pray everyday for her and I am glad it is working! <br />That poem is so beautiful, it made me want to cry. Take care and give that precious girl of yours a huge hug and a kiss from me. :)Lisettehttps://www.blogger.com/profile/06486760107232191431noreply@blogger.comtag:blogger.com,1999:blog-6897689393274111024.post-87041771086982728182010-01-08T12:57:03.853-05:002010-01-08T12:57:03.853-05:00Wow. I am sorry they made you guys go through that...Wow. I am sorry they made you guys go through that. And after all that still didn't get a clear shot? ugh. <br />Natalie screams every time and when she does, luckily they still get a clear shot even though the tech is irritated too. Monday she gets her first sedated echo and honestly, I'm a little glad that she'll be sleepy. I hate the risks of having to do that but what can you do. <br />You have a right to stand on your soapbox. And we're hear to listen..err..read. ;)<br />But yes, glad that Hope is handling everything like a champ and staying healthy. She is awesome. And so are you mama!!Dawn Bhttp://www.babybent.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-6897689393274111024.post-23290286758090627322010-01-08T07:42:23.893-05:002010-01-08T07:42:23.893-05:00Our hospital is a teaching hospital too and at tim...Our hospital is a teaching hospital too and at times that can be frustrating. We have put our foot down before for Logan too.<br /><br />Glad her appointment otherwise went well and she is doing great.<br /><br />Stef, Ryan, Wyatt and Logan <br />www.whenlifehandsyouabrokenheart.blogspot.comStefeniehttps://www.blogger.com/profile/04278714232697499851noreply@blogger.comtag:blogger.com,1999:blog-6897689393274111024.post-72253663405722392462010-01-07T19:50:48.521-05:002010-01-07T19:50:48.521-05:00Phooey! That really is ridiculous that they handle...Phooey! That really is ridiculous that they handled Hope's echo like that. Your suggestion makes PERFECT sense and truly, they should've already been doing things that way in the first place!<br /><br />Oh, and Chase has a cardio appointment tomorrow that will include an echo, so hopefully we won't have the same kind of experience as you did. :)mom2lohttps://www.blogger.com/profile/04174307421334196127noreply@blogger.comtag:blogger.com,1999:blog-6897689393274111024.post-55978766509943134822010-01-07T19:48:25.527-05:002010-01-07T19:48:25.527-05:00I'm sorry to hear about your appointment. :( I...I'm sorry to hear about your appointment. :( I know how you feel. At U of M where Aly is treated there is a LOT of teaching going on so we've definetly experienced some of the same frustrations. But, it makes it all a little better when you hear good news right? Glad to hear Hope is doing well still! :)Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.comtag:blogger.com,1999:blog-6897689393274111024.post-4446403726255689432010-01-07T19:37:15.941-05:002010-01-07T19:37:15.941-05:00Sorry to hear about the rough appointment. I know ...Sorry to hear about the rough appointment. I know that our hospital is a teaching hospital as well, but sometimes you just have to draw the line. Glad to hear that Hope is feeling better!<br /><br />~Stephanie and Braeden(HLHS)Stephaniehttps://www.blogger.com/profile/18262832699270194252noreply@blogger.com