Friday, February 11, 2011


Yes...she is really walking.  Only a few steps, but she is doing it all by herself.  Everyone keeps telling me that someday soon she will just take off and start walking everywhere.  Ha...they don't know Hope.  She will continue her little steps until she feels 100% comfortable that she will not fall or get hurt.  She doesn't like to just plop down on the ground...she likes to daintily sit herself down.  She is extremely graceful when she 'falls'.  I wish I had a video to show you her gracefulness.

Onto some other things...CHD week did not go as well as I had hoped.  I have not made it to the Clinic to drop off the bags.  I even know a mom that is there with her son and still can't find the time to get there.  Work has been crazy busy and so have the kids.  If I don't make it before the end of CHD week, I will definitely try to get there by the end of next week.

There are a lot of little ones that are going through so much right now.  I don't know how to capture all of them that need your prayers, but I am going to try:

Logan is an amazing little guy and his mom has become a close friend in the past 6 months.  Logan went to Boston and did amazing through his cath.  They were all getting ready to come home and the surgeon decided it would be better if they went in and made his confluence bigger through surgery, rather than just keeping it ballooned.  I was really hoping they would be home this weekend because we are all healthy at my house and that doesn't happen often.

Frankie is another little guy that I plan to meet sometime soon.  He is at the Clinic and his mom and dad went through a lot of the same stuff we went through with Hope.  They were told to take their little guy home to die and thankfully they decided to get a second opinion.  I am so happy and I am praying Dr. Mavroudis will work his magic on Frankie like he did for Hope.

I have been following Emma since she was born in October.  She is an amazing, beautiful little princess.  She also wears the most beautiful bows I have ever seen.  I wish Hope would wear a bow like hers for more than a minute...she absolutely hates them.  Anyway...she is waiting for her new heart and needs your prayers.  She has not been home and I know it would make her parents so happy to bring their little girl home...especially with a brand spanking new heart.

Jet is a little sweetheart and is currently waiting for lungs.  His family has gone through so much with their little man and I can't imagine how hard it would be to be separated from family for an extended length of time.  I admire his family and the friends and extended family that have been there for them.  Please pray for lungs for little Jet and also keep him in your prayers as he will be having a cath on Monday.

I wait for updates on Parker every day.  This little guy is so strong and has shown everyone that has followed his story a miracle in the making.  His mom shares her fears on his CaringBridge page and it brings up so many memories.  She writes and shares better than I ever could and it inspires me and I can actually feel what she is going through.  Please keep them all in your prayers.


  1. Oh my goodness! It makes me SO SO HAPPY to see Hope standing up and walking around {I know taking steps} but it's still a celebration!!! I'm so excited for you and her on this great milestone! Congrats - she will be running around before you know it. I will also be keeping all the other little warriors in my prayers.

  2. Love to see her walking!! Yay for Hope!!

  3. Way to go Hope! Your description of her "falling with grace" reminds me of how Maddie was when she first started walking. I'm sure you're enjoying watching her :) such a new independence is gained with those first steps. Congrats!

  4. So happy for you all to reach this milestone. I'm anxiously awaiting ours. It seems like it will never happen. I'm sure you felt the same way. Congrats little Hope.... Go Hope, Go!!

  5. Praying and praying for every single little miracle and their families. Thank you for sharing their story's.

    Hooray for Hope walking. You have to share a video of her.