We have been trying to bring as much awareness as possible to CHDs this week and I am hoping at least one person has learned more about how common they are and the affect that have on so many families. I wish there were more I could do and I know that I will be doing more next year.
We have moved Hope up to a higher calorie formula this week. She has not been gaining as much as the doctors would like, so they have increased her calories to 30. This means that she get more vegetable oil mixed with her water and formula...sounds gross to me, but she seems to be doing fine. She was on a different kind of oil and I just can't believe that vegetable oil is real healthy, but we were told that it can pack on the calories and she really needs that right now. If she would sleep a little more, she would probably gain some much needed weight. But...nope...she likes to be awake and playing during the day. She will take a couple of 1 hour naps, but nothing more. She is sleeping through the night and has been for a while, so that is wonderful. The naps would help her gain weight, but I can't seem to get myself to force her during the day. Hopefully the increase in calories will get some weight on her.
Not much new has been happening....her cath is scheduled for the 25th and the closer it gets, the more nervous we get. Please continue praying for all the heart babies that are home, at the hospital, or in heaven.