For the non-kilo people that is 21 pounds .866 ounces. In two weeks she has gained over 5 ounces...slowing down a little, but still a gain. She is over 21 pounds and I am thrilled that she is now OVER 20 pounds. It has taken so long to get here and even though it is hard, we know that she is gaining and it makes all the work that much better.
In a bit of related news, we found out that Dr. Mavroudis (Hope's surgeon) is no longer working at the Cleveland Clinic Children's Hospital. He has always been our hero. He saved Hope's life and held her heart in his hands. He is an amazing man and it was always my thought that he would be the one to do all of her surgeries. It never crossed my mind that he might not be there for her Fontan. It is very scary for me to think about someone else holding her heart in their hands. I know we still have many months (hopefully over a year) to worry about her Fontan, but I can't help but worry (it is in my nature).
Enough of that...everything else around here is going great. I have hardly started Christmas shopping, but I am hoping to get in a good day of shopping this weekend.
Please join us on September 20, 2014 at Wade Oval or sponsor our team...Hope's Heart Warriors!
Can I count the times I've watched you smile and wondered what will be? Can I think of each and every trial we've endured patiently? So very many sleepless nights, the monitors watched with care, blood pressure low, heart rate too high, knees bent down in prayer. I know Lord you are near to me, this journey's in your hands, But sometimes Lord it is so hard to meet this life's demands. I trust you God, I really do but fear creeps deep inside, sometimes I just don't understand, no matter how I try. But Jesus you are with me, and hand in hand we'll cope, for I know that you will lead us, through this heart journey of hope.