Wednesday, March 28, 2012

No Weight Check This Week

We are not heading to the doctors today to get Hope's weight checked.  She has all day appointments on the 2nd and they will be able to check her weight there.  I know she has gained and I am pretty sure she is almost 23 pounds (at least by the bathroom scale that I avoid).  On the 2nd she will start her day at an appointment with Dr. Kwan...her Nephrologist.  She seems to be peeing just fine, so I am hoping that means her kidneys are doing what they are supposed to be doing.  He likes to see us every 3-6 months and we are almost to the 6 month mark with Nephrology and Cardiology.  After that appointment we will head to Au Bon Pain for a nice lunch.  If anyone will be at the Cleveland Clinic that day...let me know.  We would love to have lunch, bring you lunch or a cup of coffee, or just stop by and say 'hi'.  After lunch we head to Cardiology where Hope will probably throw up everything she ate for lunch...she just likes them that much.  We are hoping for a great echo and a fast and easy appointment.  We do have to meet with her dietitian, so we will see what she has to say.  I think she will be pleased with how far we have come...I know I am.

I am pretty much thinking we will have a talk about a cath.  I don't know why I am thinking it because her last appointments have been great.  It just seems like it has been a while since we have had anything done and a cath seems like something that may happen.  I just hope her pulmonary arteries have been growing with her...maybe we could avoid the cath if they have been growing well.  I am kind of nervous about this appointment and I really can't explain why or where the nerves are coming from.  I just know they are there.


  1. Hi Paula! I had to write and tell you that Hannah and I will be thinking of you and Hope as we too will be at cardiology for an echo and check up on those pesky pulmonary arteries the same day! We get to see Dr. Z in Canton, so we won't be at main campus this time. I'm so pleased to hear how Hope is growing. It sounds like she and Hannah weigh about the same now and Hannah feels exactly the same way Hope does about a visit to cardiology. :) Sending cheers and prayers for a good visit next week! Amy

  2. Hope you guys have a great checkup!

  3. I am sure I have read that before, but I forgot that Hope also has issues with her PAs! I sooooo hope her appt is fabulous and there is no cath talk. But, I am glad you are thinking about it. I was totally knocked off of my feet when they said Madison would need one this summer. I was not expecting that. I know it is stupid, but caths make me just as nervous as surgery.

    So glad Hope is progressing with her weight! Wish we were in Cleveland to meet you! Maybe one day all of our kids can meet each other. I have been following Hope for so long I feel like we life long friends :)

    Heart Hugs