Thursday, April 5, 2012

We have a plan

I got a call from Dr. Prieto with a plan for the high BUN.  We will be slowly weaning Hope from her Enalpril over the next week.  Enalpril is taken by a lot of heart babies to help their heart function.  Hope's heart is functioning really well and we have not increased her Enalpril dose since she started taking it.  Her doctor feels that it probably isn't helping with her function because of the really low dose that she is on.  We are also going to try and decrease the amount of protein she eats and increase the fat...again.  This is actually really hard to do because Hope loves hot dogs, chicken, and fish.  We are going to have to get creative and start adding more oil and fatty stuff to her diet.  She hardly eats as it is, so this is going to make meal time even harder than it already is...pray for my patience and sanity.

We will be going for blood work and to see the nephrologist in about a month to check her BUN and Creatnine again.  We really want/need both numbers to go down.  Otherwise, it will be a really good indicator that her kidneys are not functioning very well.  This will not be good news.  If they are still high, we will be going in the day before her cath for IV hydration.  The contrast they use in the cath lab can hurt the kidney's so they want to make sure that if the function is decreasing, we try to regulate that by heading in a day early and making sure she is really hydrated.  I am hoping it does not come to this, but we will do it to make sure she has a safe cath.

Easter is coming up quickly and we are all really excited.  Destiny gets to come and spend Easter with us...she moved to Kentucky with her mom and we have missed her so much.  Everyone is really excited to see her and have her spend Easter with the family.  My brother's birthday is Easter Sunday, so we will have lots to celebrate on Sunday.  We wish you all the Happiest Easter!

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