Monday, May 26, 2014

2 Months on the List

Today marks 2 months that Hope has been waiting for her perfect new heart.  She has been in the hospital for 82 days and there are days that it feels much shorter and others that feel like it has been much longer.  We have moved into the 'penthouse suite' of M40.  It is a HUGE room with an adjoining bathroom.  It has a ton more open space than the other rooms we have been in and we are making it more and more like home every day.  I am hopeful that we won't get too comfortable in the room as we would like Hope to spend some time at home this summer...but we also know that waiting for the perfect heart can take some time.

We have met so many great families in our time at the hospital and I am always thrilled when they leave.  I hate to think of anyone else having to spend this much time at the hospital.  It is not easy and there are times when it is downright depressing.  Visitors are great and we love to have people stop in when they have appointments or are staying for a little while recovering (or for IV antibiotics).

We have also been so privileged to have so many great friends and family.  Hope has received so many great presents, cards, and prayers.  Thank you never seems enough for what everyone has done for our family.  Complete strangers (and A Special Wish Foundation) have shown us the true spirit of giving.  My heart is so full of gratitude and I wish there were better words to show our appreciation, but THANK YOU so much for your support.

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