Thursday, June 5, 2014

3 Months in the Hospital

Hope and Dr. Boyle - he does her hair every day now!
Today marks 3 months that Hope has been in the hospital.  She has been on the list for 71 days...that seems a lot longer when I actually type it out.  This past couple of weeks have been really different and I think we are just getting impatient with the waiting.  I hate that we feel that way because we know that in order for Hope to receive a heart someone else will need to say goodbye to their little one.  Spending a lot of time in the hospital can try the patience of anyone and we have found ourselves getting edgy this week with each other and family.  This hospital stay has shown us how wonderful family and friends can be and we thank everyone that has come up and visited and helped us these last few months. Sadly, it has also shown us that even though we feel and live the seriousness of everything that is happening, everyone around us has their own issues and time that they need to spend that do not include us.  Our feelings have been hurt a lot and we need to figure out how to get through this and not hold our current feelings toward anyone once we get past the transplant.  It is hard, but we will get through and we will continue to lean on people that go out of their way to make sure we have everything we need...while sacrificing so much of their lives and the lives with their families and jobs.  The support we have received from family, friends, and complete strangers is overwhelming so I hope I have not taken that away from anyone...we appreciate everything everyone has done for our family.  We could NOT do this alone.

Please keep us in your prayers for peace, patience and as Hope is now telling everyone when they ask what they can get for her "a brand new heart".

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