Monday, March 14, 2011

18 Months, Walk, and More

Hope turned 18 months old today...AMAZING!  She is absolutely adorable and her personality is just the cutest ever.  She laughs, smiles, and talks all the time.  I can't understand a word she is saying, but she carries on a conversation.  She is still hanging on to everything when she walks, but I know she will do it on her own sometime soon.  I don't mind because I know life will get that much harder when she is walking on her own and able to get places so much faster.

This past weekend I had the privilege of getting together for lunch with a bunch of heart moms, Hope's dietitian (whom we love and respect and don't know what we would do without her in our lives), and my newest inspiration...Alicia.  Alicia is 31 years old and has HRHS and Heterotaxy.  She is beautiful, funny, smart, and just the nicest person.  She is taking the lead on the CHF/ACHA Congenital Heart Walk in Cleveland and also works at Rainbow Babies and Children's Hospital.  She works with the new Cardiothoracic Aurgeon as well as the Interventionist Cardiologist.  She sees baby hearts all the time...words cannot express how much I respect anyone that is able to do that...especially a CHDer.  She gives me so much hope and inspiration and I am so blessed to know her.

I could go on and on, but I want to spend a few minutes trying to recruit my readers to form a team for the Northern Ohio Congenital Heart Walk.  Our Walk will be taking place on September 17th at Wade Oval Park in University Circle at 11am.  The website is below...please register either for our team or create your own team.  If you are out of the area and would like to sponsor our team...we would love it.  I am so excited to be working on this walk and hope it is a great success.

Our team is Hope's Heart Warriors.


  1. alicia sounds amazing for sure!!! happy 1.5 bday hope :) i forgot to mention in our cp update that avery still weighs 20 lbs like she did 6 mos ago!

  2. Alicia sounds like a great and brave person. As someone the same age, I can't say that I would have been emotionally able to put myself in a career position with other heart babies. There must be a lot of emotional struggle involved with a job like that some days.

  3. Alicia sounds like such a wonderful person, bless her. Hope is is too cute! ((HUGS))

  4. I hope you get a huge team to walk. Good luck!!