Saturday, May 14, 2011

20 Months and Looking Back

Today Hope turns 20 months old.  What a wonderfully perfect day!  She is amazing and such a sweet wonderful miracle.  2 years ago today I learned that Hope would be born with Hypoplastic Left Heart Syndrome.  I wrote this post and it was my very first post ever.  I never thought we would be where we are today.  I cannot even begin to describe how I feel about that time.  It was painful and something I would not wish on anyone.  I remember many discussions about terminating my pregnancy, how difficult life would be, how she might not survive, how even if she survived she would have to undergo countless medical procedures and what kind of life would that be for her and our family.  I think back to so many comments that were made and at times I get angry.  I get angry at the people that make the comments and at myself.  Now that we have gone through so much the self-anger is because I just didn't know.  I know ignorance is bliss and not an excuse.  I know that I should have spent a whole lot more time with positive people and not listen to the negative.  I wish I had enjoyed my pregnancy more with Hope.  I do have regrets, but I know that everything we went through was for a reason. of that for a while.  Hope is doing amazing.  She is walking everywhere and I can hardly get her to sit down.  I am hoping she will reach 17 pounds pretty soon because I really need her to be 18 pounds by our appointment on the 1st of August.


  1. I love the pictures of Hope! What a little darling she is!

    It is hard looking back upon that time when the words Congenital Heart Defect and our child was mentioned in the same sentence. It's a time that we definitely don't ever forget and takes quite a bit of time to live down.

    Our kiddos are such a blessing. Wouldn't trade anything we've been through!

  2. She is getting so so big! We have had the same "anniversary" recently and it seems like, no matter how much time as passed, that day will always remain clear.
    Hope has done so well and I've loved being able to follow along with you all.

  3. Hope is so adorable! And she has gotten very big! I am so glad she is doing so well. It is heartbreaking to refelct on their journey, everything they have had to overcome but it is awesome to have them here. I will always be rooting for your little girl! Hoping she gains some weight for you!

  4. To Whom It May Concern:

    My name is Nick Tierney, with HealthTheater Networks. I just discovered your blog devoted to your daughter Hope, loved your content, and thought we might have something to contribute.

    We are a top health video production company with several videos about different aspects of cardiology--all featuring real people telling the story of their personal battle with the condition. In fact, we just filmed a few new powerful stories on heart murmurs and arrhythmia in teenagers with more on congenital heart defects to be posted soon.

    Feel free to check out my favorite one here:

    We are interested in syndicating these videos through our player to your website, for free, in exchange for the targeted visibility that exposure on your site would provide.

    In addition, although we have little content in the area of congenital heart defects, we are always interested in growing our library of video content. If of interest to you, would you be willing to share video content about your story with us?

    If interested, could we please schedule a short call to explain further?

    Thank you,


    Nicolas Tierney
    Dramatic Health
    45 Rockefeller Plaza, Suite 2000
    New York, NY 10111
    Office 212 332 7132
    Mobile 203 912 6179