Saturday, October 24, 2009
Tomorrow Jerry and I are taking a tour of the rehabilitation center to see where Hope will be going for a little while when a bed opens. They don't think she will be able to get in until sometime next week...I am hoping for early next week. The sooner she gets in there, the sooner she can come home. I am getting prepared to learn how to measure and insert the feeding tube. I get the feeling that she is going to come home with a feeding tube and I need to know how to check and change it before she comes home. I already know how to check it...that's the easy part, but changing it is the scary part for me. If you insert it wrong, it can go to the lungs rather than the stomach and that is what scares me the most.
Now to the problem with throwing up...I am sick of it. I really wish I knew what was wrong, but I really don't have a clue. They are going to have an ENT (ear, nose, throat) doctor take a look at her on Monday to see if there is any problem in those areas. I have also asked if they could have a stomach doctor take a look at her...it looks like she is throwing up a lot of mucus, not formula. She is also not throwing up during the feeds and it is happening with both NG feeds and when she is fed with the bottle. The weird thing to me is that it is happening about an hour after she is done eating and it is not happening with every feeding. It is puzzling to me and I am hoping maybe a doctor can figure out what the problem is...she really needs as much food to stay in her as possible. Big news this morning...she now weighs 2.7 kilos (she was in the 2.6s for so long). That is almost 6 pounds!!!
Thank you once again for keeping us in your thoughts and prayers. We appreciate all of the support we have received through this journey.
Posted by Wodzisz Family at 10:28 PM