So far, so good. It looks like I am bringing Hope home tomorrow. I am spending the night at the hospital to make sure I know her full schedule and then I am getting tested tomorrow on replacing her NG tube tomorrow. So far, everything is looking good for her to be discharged...just not sure what time. When we get home we will have a few visitors delivering stuff for her. She will get her own pulse oximetry machine that checks her oxygen saturation levels. I will need to check that at the same time every day and call the cardiology nurse every day with the results. I also need to weigh her and give the nurse that information as well. I bought a scale and I am hoping that will be delivered tomorrow or Thursday as well. The home health care agency will also be delivering a food pump for her NG tube and I need to be there so they can show me how to use the machine. I guess it is a little different than the ones they use in the hospital. I am sure it won't be too difficult to figure out, but it is nice that they will be showing Jerry and I how to use it.
Today has been pretty uneventful around the hospital which is great. I brought a suitcase to pack up all of Hope's stuff...and there is a lot. Marilyn and her family bought Hope a new stroller and car seat which is awesome. It is pink and brown and I have strolled the halls of the step-down unit to get her comfortable with being in the car seat. She kind of liked it, but I know that she enjoys being carried around a lot more.
I have requested an early discharge, but I am guessing early around means sometime in the afternoon. I asked for 9am...let's see what time we actually get out of here. It will just be so great to be taking my little girl home for the first time. I am sure the boys will love seeing her and we can finally all be at home. I am so excited and I think Hope is as well.
I didn't bring the connection to download pictures, but I will get some posted tomorrow when we get home. I know I will be taking a bunch when we are getting ready to leave.