Thursday, April 1, 2010
Cardiology visits are something we just expect with Hope. Every few weeks and hopefully moving to every few months, we will be taking Hope to see Dr. Prieto to make sure everything is fine. We went today and just thought it was a regular echo and check up and that everything would be fine for another month. Not so much the case. We knew her pulmonary artery was small and Dr. Mavroudis made it bigger and patched it during her Glenn. What we didn't know is that the sutures on the patch could create scar tissue and that could make the pulmonary artery small and decrease the blood flow. What does this mean? It looks like Hope will be heading back to the cath lab in the next month. Dr. Prieto will be checking her again in two weeks, but is not real hopeful that it will grow in that time frame and she really needs the blood to flow well to her lungs or it will affect her lungs. This is scary because she spent two nights in the hospital after her last cath and this time it is not only diagnostic...they will need to either balloon the pulmonary artery or put in a stent. We talked about both procedures and they both seem equally scary and of course, the cath is no easy procedure either. I found a good article on stenting:
What is a stent and how is one used?
A stent is a wire metal mesh tube used to prop open an artery during angioplasty. The stent is collapsed to a small diameter and put over a balloon catheter. It's then moved into the area of the blockage. When the balloon is inflated, the stent expands, locks in place and forms a scaffold. This holds the artery open. The stent stays in the artery permanently, holds it open, improves blood flow to the heart muscle and relieves symptoms (usually chest pain). Within a few weeks of the time the stent was placed, the inside lining of the artery (the endothelium) grows over the metal surface of the stent.
There is also the possibility/probability that Hope will need additional caths to increase the size of the stent as she gets older. Another scary thought and more time in the hospital that we are not looking forward to.
On a happier note...the weather is getting MUCH better. We are spending more time outside and Hope loves being outside. She loves to swing and just be outside with the boys. We are all looking forward to summer and being able to play more outside and spend more time with family and friends. Summer brings parties and visitors and Hope loves new people. She doesn't enjoy anyone poking at her, but she loves to smile and 'talk' to new people.
Posted by Wodzisz Family at 6:52 AM