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| Yes...she is still small enough to take baths in the kitchen sink. She could probably spend the day in there...she loves water! |
Wednesday, February 22, 2012
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This blog is dedicated to Hope. I have been sharing my thoughts and feelings since she was diagnosed with Hypoplastic Left Heart Syndrome (HLHS).
Northern Ohio Congenital Heart Walk
Please join us on September 20, 2014 at Wade Oval or sponsor our team...Hope's Heart Warriors!
Can I count the times
I've watched you smile
and wondered what will be?
Can I think of each and every trial
we've endured patiently?
So very many sleepless nights,
the monitors watched with care,
blood pressure low, heart rate too high,
knees bent down in prayer.
I know Lord you are near to me,
this journey's in your hands,
But sometimes Lord it is so hard
to meet this life's demands.
I trust you God, I really do
but fear creeps deep inside,
sometimes I just don't understand,
no matter how I try.
But Jesus you are with me,
and hand in hand we'll cope,
for I know that you will lead us,
through this heart journey of hope.
I've watched you smile
and wondered what will be?
Can I think of each and every trial
we've endured patiently?
So very many sleepless nights,
the monitors watched with care,
blood pressure low, heart rate too high,
knees bent down in prayer.
I know Lord you are near to me,
this journey's in your hands,
But sometimes Lord it is so hard
to meet this life's demands.
I trust you God, I really do
but fear creeps deep inside,
sometimes I just don't understand,
no matter how I try.
But Jesus you are with me,
and hand in hand we'll cope,
for I know that you will lead us,
through this heart journey of hope.
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Hope's Birth Slideshow
About Me
HLHS - Hydroplastic Left Heart Syndrome
My Blog List
Followers
Good Reading
- http://www.amazon.com/Heart-Warriors-Family-Congenital-Disease/dp/1933016809/ref=sr_1_1?s=books&ie=UTF8&qid=1333992011&sr=1-1
I'll be thinking of you all and hoping that Hope just wanted to give mommy a little worry with the weight and the next check in she is up more than before. Sending lots of hugs your way.
ReplyDeleteSorry she had a bad weight.Hopefully this week will be better.
ReplyDelete