Thursday, November 17, 2011
9.15 kg = OVER 20 POUNDS!!!
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This blog is dedicated to Hope. I have been sharing my thoughts and feelings since she was diagnosed with Hypoplastic Left Heart Syndrome (HLHS).
Northern Ohio Congenital Heart Walk
Please join us on September 20, 2014 at Wade Oval or sponsor our team...Hope's Heart Warriors!
Can I count the times
I've watched you smile
and wondered what will be?
Can I think of each and every trial
we've endured patiently?
So very many sleepless nights,
the monitors watched with care,
blood pressure low, heart rate too high,
knees bent down in prayer.
I know Lord you are near to me,
this journey's in your hands,
But sometimes Lord it is so hard
to meet this life's demands.
I trust you God, I really do
but fear creeps deep inside,
sometimes I just don't understand,
no matter how I try.
But Jesus you are with me,
and hand in hand we'll cope,
for I know that you will lead us,
through this heart journey of hope.
I've watched you smile
and wondered what will be?
Can I think of each and every trial
we've endured patiently?
So very many sleepless nights,
the monitors watched with care,
blood pressure low, heart rate too high,
knees bent down in prayer.
I know Lord you are near to me,
this journey's in your hands,
But sometimes Lord it is so hard
to meet this life's demands.
I trust you God, I really do
but fear creeps deep inside,
sometimes I just don't understand,
no matter how I try.
But Jesus you are with me,
and hand in hand we'll cope,
for I know that you will lead us,
through this heart journey of hope.
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Hope's Birth Slideshow
About Me
HLHS - Hydroplastic Left Heart Syndrome
My Blog List
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Good Reading
- http://www.amazon.com/Heart-Warriors-Family-Congenital-Disease/dp/1933016809/ref=sr_1_1?s=books&ie=UTF8&qid=1333992011&sr=1-1
Wow! What a great update about both kids. My son would love, love, love Jerry's TRex shirt. Thinking of you all and love the positive updates!
ReplyDeleteWay to go Hope.Great job on the weight gain and good update with your kidneys too.Moms always love to get those updates.Take care
ReplyDeleteWow! That is AMAZING news! I am so happy for you!!!!
ReplyDeleteThank you so much for all of support with Madison. I very much appreciate you.
20 lbs... that is awesome!
Brandi
That is great news!
ReplyDeleteWay to go Hope! All the other cool kids are going to want to know your secrets for your new and improved girlish figure.
ReplyDeleteHappy belated birthday to Jerry! Keep up the great job in school!
Wonderful and inspiring to read your blog--it is amazing to read the writing of someone whose journey has been similar in so many ways to ours.
ReplyDelete