Saturday, September 19, 2009

Oxygen Hood and Central Line

Yesterday was pretty difficult for me, but the doctors tell me that having Hope in an oxygen hood is best for her.  I am not able to hold her and can only touch her when the nurses are working on her.  They want to make sure her oxygen saturation levels stay in the mid-80s so that she does not get too much oxygen to her lungs and not enough to her body. 

Dr. Forbes, the ICU Attending Physician put in a central line last night.  It only took him 10 minutes and I am real proud of how well Hope held up through the procedure.  It scares the hell out of me every time they do anything to her and most of the time I can't be in the room with her, so it makes the worrying even harder.  She also had a chest x-ray and her lungs look great.  They may do another echo of her heart today, but we will find out for sure later.

Jerry picked up Destiny last night and she was finally able to meet Hope.  Little Jerry was also over his cold, so I took him in to see her too.  I think he was a little scared to see her, especially because she is in the oxygen hood.  He only stayed in there for a few minutes and then wanted to go back to the waiting room and play some more.

I had to take Jerry and Paul to the doctors this morning.  I missed Paul's appointment on Wednesday for his 15 month vaccinations, so thankfully I was able to get him in today.  I had the doctor give them both flu vaccines so that is one less thing to worry about.  I don't know yet whether I will have them get the H1N1 is just too new and that makes me nervous.


  1. Thanks for the update. Please try to take the day as it comes. All the fears you have is normal; I had to remind myself that my little Andre was in the best care for his survival and I had to focus on that because it was good. The same goes with your sweet baby girl. Try to remain positive and focus on all the good things that's going around you, her, your family, and be thankful for everything that has happened and is happening even though it doesn't feel like there are things going quite right. I'll keep on praying for you.

  2. Wow, reading your posts brings back a lot of memories. My name is Kayla and I have a 7 year old daughter with HLHS. I know what you are going through. I will be praying for Hope.

  3. Hope this is aunt Danielle saying (WE LOVE YOU)

    love always the Shupps

  4. Thanks for the information... I really love your blog posts... specially those on Baby Weighing Scale