Jerry and I feel like we have spent a long time on this roller coaster ride and just when we think it is going well, we get news like yesterday. We both fell apart, but held on to each other. Looking back on yesterday I realize how strong our relationship is and that no matter what happens, we will still have each other and our marriage will be strong. That is something we worried about a lot because our marriage has never really been tested by anything other than children and money problems (what marriage hasn't been through that?) We are both realizing that we need to cherish the time we have with Hope and pray every second we get that she will get better.
We went back to the hospital last night and spent time with Hope. It gave us a lot of clarity on our decision and we talked to the ICU doctor about getting in touch with the Cleveland Clinic and seeing if they would be willing to take over Hope's care and evaluate her to see if they would consider doing surgery. We should know something today or tomorrow, so buckle up for the roller coaster ride!
We want to thank everyone again for all the prayers, thoughts, and support you have given over the last week. I can't believe Hope is a week old already. She is staying strong and even though her blood tests don't show it, she is peeing a lot...which seems like a good sign to me.