So far, so good. It looks like I am bringing Hope home tomorrow. I am spending the night at the hospital to make sure I know her full schedule and then I am getting tested tomorrow on replacing her NG tube tomorrow. So far, everything is looking good for her to be discharged...just not sure what time. When we get home we will have a few visitors delivering stuff for her. She will get her own pulse oximetry machine that checks her oxygen saturation levels. I will need to check that at the same time every day and call the cardiology nurse every day with the results. I also need to weigh her and give the nurse that information as well. I bought a scale and I am hoping that will be delivered tomorrow or Thursday as well. The home health care agency will also be delivering a food pump for her NG tube and I need to be there so they can show me how to use the machine. I guess it is a little different than the ones they use in the hospital. I am sure it won't be too difficult to figure out, but it is nice that they will be showing Jerry and I how to use it.
Today has been pretty uneventful around the hospital which is great. I brought a suitcase to pack up all of Hope's stuff...and there is a lot. Marilyn and her family bought Hope a new stroller and car seat which is awesome. It is pink and brown and I have strolled the halls of the step-down unit to get her comfortable with being in the car seat. She kind of liked it, but I know that she enjoys being carried around a lot more.
I have requested an early discharge, but I am guessing early around means sometime in the afternoon. I asked for 9am...let's see what time we actually get out of here. It will just be so great to be taking my little girl home for the first time. I am sure the boys will love seeing her and we can finally all be at home. I am so excited and I think Hope is as well.
I didn't bring the connection to download pictures, but I will get some posted tomorrow when we get home. I know I will be taking a bunch when we are getting ready to leave.
Tuesday, October 27, 2009
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That's fantastic news! Congratulations on bringing your baby home!
ReplyDeleteSo glad Hope gets to go home tomorrow!!!!
ReplyDeletePaula that is wonderful news! I am so happy for you to have your family all together again. She is such a beautiful girl. Yay!!!!
ReplyDeleteThat's awesome news! Finally Hope gets to go home today!! Yay! I remember the day I took Andre home for the first time, after being only a few days in NICU; it was surreal!! I kept looking at him in his car seat all the way home, promising that we wouldn't be separated like that ever again. I kept my promise, I didn't leave his side until he had to be taken in for his heart procedures.
ReplyDeleteI can't wait to see new photos :)
I'm so happy for you! It will be surreal to have her home! I still am amazed that Doug is with us every night and he has been home for 11 months!
ReplyDeleteCathy
Congratulations Paula and Jerry! I am so happy Hope is going home. You all have been so brave and strong through all this. Please know our palliative care team helps all families who have a child with a complex, chronic medical condition. If you think we can be a good support for you, we can talk further about how this might work. You can e-mail me at ncarst@chmca.org. It has been our privilege to follow Hope's journey on your blog. Nancy
ReplyDeleteI am soo excited for you!! I love you and look so forward to seeing Hope at home!! I hope you are busy right now packing everything up for the trip home!!
ReplyDeleteCongratulations...I am so happy for you. It is all a little overwhelming at first, but you will both be pros before you know it!
ReplyDeleteStephanie and Braeden(HLHS)
Paula,
ReplyDeleteCongratulations! I am so happy you finally get to bring your precious baby home! You are in my thoughts and prayers!
-Chelsey
Yay Hope! I'm happy to hear she's coming home at last. Good luck mom. :) Hang in there.
ReplyDeleteCongrats! I hope u got to bring here home! I have been home sick with the flu! Thanks for everything and all the support! We will miss you! Keep in touch!
ReplyDeleteI'm Oh SOOOO Happy for you!!! That is wonderful news! You've both endured a long hard road and can't wait for you to post a pic from home, where she is surrounded by her family and love. Congrats! Love, Michelle
ReplyDeleteI am so happy to hear the news!!! You have no idea how much this means to me because not a day went by that I didn't take a moment to pray that she came home with you. I know it is going to be scary at first but you will be fine. Take care and sending hugs your way.
ReplyDeleteWhen you can MORE PCIS! (I know your busy, but I had to ask!)
ReplyDelete