Thursday, September 24, 2009

Surgery Scheduled



We met Dr. Mavroudis today before we left the hospital.  He came into Hope's room really quick before he left for the day to talk to us.  He told us that Hope is scheduled for surgery on Wednesday, September 30th.  I asked if there was a chance that he would decide not to do the surgery and he indicated that if she stays in the same condition she is in now (or hopefully better), he would be doing the surgery.  So, we are praying every minute of every day that she gets better!


They placed an arterial line in Hope's wrist today to better keep track of her blood pressure as well as allowing them to draw labs better...that way they don't have to poke her every time they need to draw blood.  This means that she has and IV in her wrist and it makes it hard for her to move her hand, but she doesn't seem to mind all that much.  She really is a trooper with all the stuff she is hooked up to.

We got a call today from a nurse case manager at Medical Mutual.  She will be helping to manage Hope's care at the Cleveland Clinic.  We also met with the social worker from the Cleveland Clinic and she will also help us with the care Hope is receiving and they will both be coordinating the care Hope receives when she leaves the hospital.


We have received a lot of support from everyone and we thank everyone from the bottom of our hearts.  My mom and sister have gone above and beyond to watch Jerry and Paul so we can be at the hospital with Hope. Thank you doesn't seem like a big enough word for all the support, but everything is so appreciated that we can't begin to express how we feel.

8 comments:

  1. Fantastic news Paula. It is great to hear they are going to do the surgery. What a great decision to get the second opinion!

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  2. I am so glad to hear that they will do the surgery Paula! That is such great news. Hope is such a cutie pie! Prayers and positive thoughts will continue!

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  3. Praise God! Continuing to say prayers that Hope will improve even more between now and Wed. I know you don't know me, but having a daughter who's also been through a number of open heart surgeries, I am familiar with a lot of what you are going through. I work in the Akron area, so please let me know if there's anything at all that I can do to help. And, although it's hard sometimes, don't forget to take care of yourself! ~Angie Montgomery

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  4. Paula, that is such great news!!! I am so happy for you guys. I know there is still a long road ahead and it is hard to get excited but you keep your faith up. Sending hugs your way!

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  5. That's such fantastic news Paula. I'm so happy to read that there is a chance with this clinic. I'm praying for continuing positive news. We're all here for you if you need anything. Take good care of you.

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  6. Praying for Hope! So happy they are moving forth with the surgery! Keep us posted. (((hugs)))

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  7. I'm an HLHS mom and ran across your blog. The MD's at our hospital were very concerned about open heart surgery as well because of the fact that our son only had one working kidney as well. We were told of the major risks but went ahead with the Norwood. It was his only option. He made it through that surgery beautifully. Kidney function is great! I'll be praying for little Hope on Wednesday.
    www.thewilsonheart.com

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